We are looking for patients to share their experiences participating in a clinical research trial!
We have some questions you can answer or you can just write freely to us
Understanding - your decision to take part in a Clinical Trial
- What first made you consider joining a clinical trial?How did you learn about the trial you participated in?
- What factors influenced your decision to take part?
- Did you have any concerns before joining? How were they addressed?
- Did anyone help you make the decision (e.g., family, doctor)?
Experience during the trial
- Can you describe what your experience was like during the trial?
- What was a typical visit or interaction like?
- How did the trial affect your daily life?
- Were there any unexpected challenges or surprises?
- Did you feel supported by the research team?
Communication and Understanding
- How well was the trial explained to you before you joined?
- Did you feel informed throughout the process?
- Were the materials and conversations easy to understand?
- Was language or terminology ever a barrier?
Emotional and Personal Impact
- How did participating in the trial make you feel?
- Did it change how you view your condition or treatment?
- What did it mean to you to contribute to research?
Reflections and Advice
- Would you participate in another trial in the future? Why or why not?
- What advice would you give to someone considering joining a trial?
- What do you think researchers could do better to support participants?